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Post by viruslabrat on Nov 21, 2008 19:53:04 GMT -5
If you're in Australia just become a blood donor to the Red Cross and ask to join the Bone Marrow Registry. You specifically have to ask to be put on it.
Our blood is going to the UK? And the Red Cross is always saying how short they are. Didn't realise they exported blood too.
I understand what you mean Paddy about feeling the need to help when you know the person is mixed. I feel that way too. I guess it's because there's less of us out there than other groups of people and I feel more pressure to help. Don't want to be the only EA in the world who's a match but turns their back on them.
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Post by swinger on Dec 15, 2008 20:57:57 GMT -5
Here is another appeal. Help if you can, one day you or a loved one -- maybe a child -- may need this kind of help. (Cross posted from another forum): Hi everyone,
Sorry to be so blunt in the subject line, but my family really does need your help! My sister-in-law Krissy Kobata is in bone marrow failure. She is a vibrant 25 year old. We have failed to find her a match within our family and the entire National Registry ( millions of people). It is a very scary and the extended family spends every weekend holding bone marrow drives in Asian communities. Krissy's best hope for a match is with someone like her- half caucasian/ half japanese american. If you end up being a match, you will be saving her life!
IT IS SO EASY TO GET TESTED. JUST A CHEEK SWAB! I can have the kit sent to you from the City of Hope. You don't have to pay!
Please look at her website:
www.teamkrissy.com
Please help us!!!!! Think of your own family. The National Bone Marrow Registry is grossly under-represented by the Asian population!
Thank you, Anne Carr Kobata |
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Post by admin on May 18, 2009 8:59:28 GMT -5
(Cross posted from another forum): MIXED ASIAN BONE MARROW DONORS BONE MARROW DONORS & POTENTIAL QUALIFIED MATCHES WE NEED YOUR HELP My sister Kathy was recently diagnosed with Acute Myelogenous Leukemia (AML), a cancer that rapidly produces abnormal cells which later accumulate in your bone marrow and interfere with the production of normal blood cells. Kathy is a high-spirited, outgoing mother of two daughters. Time is of the essence for us because although Kathy is currently undergoing chemotherapy, she needs a lifesaving bone marrow transplant. Because of her mixed racial background (Japanese & Caucasian), finding a match has been unsuccessful. Again, WE ARE NOT GIVING UP because we know that match is out there. We ask that you assist us in the search for a qualified bone marrow donor. There are thousands, if not more, HAPA's (½ Asian and ½ White) in need of bone marrow transplants to save their lives. Similar to my sister, they are unable to find qualified bone marrow matches. With that said, we implore you to tell your friends, your family, and your co-workers, particularly if they are of Asian ancestry, to sign up for the bone marrow registry and become a donor. It’s simple, quick, and free. “BE THE MATCH THAT SAVES HER LIFE” Thank you for reading this message and we urge you to please spread the word! For additional information and bone marrow drives in your area, please feel free to contact me at mscindyd@hotmail.com or visit www.AsianMarrow.org. Thank you, Cindy Downey & Family *** EAN is working with the Asian American Donor Program ( www.aadp.org ) to get the message out that mixed people need to register. You'll see more on the main site relaunch. Tests kits are free to the qualified. There's lots of information at the site, please check it out.
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Post by milkman's baby on May 18, 2009 20:35:57 GMT -5
Last time I tried to register with the National Bone Marrow Registry, I found out I would have to pay $52 for the kit. I hate to sound greedy, but I am a broke college student. I feel as if charging people who are trying to do good is counterproductive. Does anyone know any free and convenient services?
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Post by TeeHee on May 19, 2009 1:38:30 GMT -5
Last time I tried to register with the National Bone Marrow Registry, I found out I would have to pay $52 for the kit. I hate to sound greedy, but I am a broke college student. I feel as if charging people who are trying to do good is counterproductive. Does anyone know any free and convenient services? When I joined the registry, I did it in person rather than ordering/mailing off the kit. While donations are always encouraged, it wasn't mandatory for me to pay anything. You could check for the nearest donor site to you for more details. |
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Post by admin on May 19, 2009 10:49:41 GMT -5
^ Exactly! EAN is working with the Asian American Donor Program ( www.aadp.org ) to get the message out that mixed people need to register. You'll see more on the main site relaunch. Tests kits are free to the qualified. There's lots of information at the site, please check it out.
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Post by milkman's baby on May 19, 2009 19:16:55 GMT -5
lol As you can see, I get lazy and tend to read the first couple posts in a thread and go straight to the end. lol But thanks for the link. I'll check it out.
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Post by milkman's baby on May 26, 2009 14:14:59 GMT -5
I got the cheek swab kit in the mail today, and I'll be sending it in.  |
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Post by admin on May 26, 2009 14:44:14 GMT -5
I got the cheek swab kit in the mail today, and I'll be sending it in. You rock! Thank you. |
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Post by xandra on May 28, 2009 17:47:04 GMT -5
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maow
Full Member
Posts: 363
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Post by maow on Jun 3, 2009 22:09:13 GMT -5
I have sent an email to them with a few questions including resources for those living in Canada. I did do a search and found www.blood.ca/CentreApps/Internet/UW_V502_MainEngine.nsf/page/Home?OpenDocumentI havent done a thorough read through but they also deal with bone marrow donation. Note that eligibility for donation will be different from country to country as I discovered with regards to blood donation. Anyhow, once I get some feedback I will share this here in this thread, I urge others to seek out resources and organizations where ever you reside. |
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maow
Full Member
Posts: 363
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Post by maow on Jun 4, 2009 15:01:50 GMT -5
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Post by xandra on Jun 5, 2009 19:11:11 GMT -5
Thanks for looking into that, Maow! I was disappointed that the Star didn't provide any information about Canadian donations.
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Post by Phil on Jun 6, 2009 7:49:03 GMT -5
It would be really interesting if one of our members were to donate. IF one of us should please post.
I was going to register with ONEMATCH. I really wanted to help by giving. But I spoke to my aunt about it who has been treating me for my spinal condition. She told me it probably isnt a good idea for me with my history. She doesn't follow conventional medicine but I believe her a lot more than the docs I was seeing before.
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Post by admin on Jun 14, 2009 2:09:03 GMT -5
Often bone marrow is needed when chemo fails - it's the only chance at surviving some forms of cancer. The hardest to match so far are 1/4 3/4 mixes. There's a young man fighting for his life - his doctors have given him 0% chance at finding a donor based on his ethnic makeup (1/4 Japanese). www.facebook.com/group.php?gid=187327345176If you haven't written for the swab kit but have thought about it, please think about it some more. Nobody can save us in these situations - we can only save ourselves. |
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